verulito
Joined 12 years ago
Joined 12 years ago
Anyone who understands the treatment, do you know if the reverse is possible too? I have hyperacusis and could benefit from deafening, esp if it's easily reversible.
The best we have now is disrupting the ossicular chain. Other than surgical risks, it's not fully reversible.
I follow this topic daily, on twitter, in telegram (both Israeli and Arab groups), and among the thousands of Jews I know across the world on FB (from anti-Zionist Jews to Orthodox). This is the first time I've ever seen the phrase "Greater Israel" mentioned. I'll go research it now but it strikes me as a manufactured obscurity, while "From the River to the Sea" is prevasive.
As well, there was fighting in the streets. They had to turn off the lights at night and hide in the basement to avoid raids. There was a sniper who was shooting at their apt from a nearby mosque and they would find shells on their balcony. They lived on Ben Yahuda St.
Just thought readers might appreciate a first hand account of what it was like to be a Jewish Israeli at the time.
At times I've been unable to tolerate everyday noises like talking or faucets. An unstudied condition that's hugely disabling. The other person in my city with this condition lives in a closet 24/7 with earmuffs.
What's his excuse? "I'm a libertarian and I don't like when gun ranges bother me. I just want to get out there and shoot". Dumbfounding.
This disease is repetitive stress injury, in that every time you experience pain it lasts for weeks or years even and your sound tolerance goes down. So it is imperative that we never have accidents like those that cars like these can produce.
It can get so bad that you can't tolerate even simple things like the sound of sheets. The other patient in my city is confined to a closet 24/7 with earplugs and earmuffs because his tolerance is so low. He continues to worsen because sounds like these penetrate buildings well.
It is nearly unstudied so there's little hope of getting out of this hole. The least society can do for us is protect us from these assholes so we can hide in closets in peace.
Lots of conditions have pain from sound but this is no ordinary condition. It is highly unstable and degenerative. Something is broken, the more broken it gets, the more easily it gets broken, and the longer it takes to heal, if at all. Many of these patients are stuck indoors 24/7, with earmuffs and earplugs, afraid of even the slightest sounds. Even then, they still get a myriad of symptoms, different kinds of pain, autophany, visual snow, distortions. Most have tinnitus, myself included, and it can be very, very loud. One poor guy has 50 tones. Another woman hears it in her sleep.
All these people want to live but this condition is living torture and you end up living like a caged animal. We have no idea what causes it and there's little hope of improvement, given that it gets virtually no research money. No drugs exist which can mask the pain. Many of these patients end up going because they truly have no options, no hope, and living has become unendurable.
Thankfully my hole isn't so deep yet but I have decades of dental appointments and MRIs to endure. As long as I mostly stay home and avoid nearly all social interaction, I can probably hold out a long time before I get that bad. However, I also have mystery tendonitis and other pains that are getting worse so idk. My mast cell labs are all very abnormal so I'm thinking it's auto-inflammatory.
Mayo clinic is a waste of time I hear for stuff like this. I'm going to try the Metrodora institute, see if they can come up with something. Nervous that I may worsen from the flight and end up stuck there.
There is no specialty in medicine for treating undiagnosed diseases. You just bounce around between doctors until you give up.
PrEP is well tolerated given it's known side effects but conservative medicine dictates that we don't prescribe medications unless we have a measurable benefit and that's not a large group of people. A homosexual male who has lots of unprotected sex with strangers should probably be on it. A hetereosexual mostly monogamous person probably shouldn't be.
A big factor here is that the prevalence of HIV in the US is low, at .34%. Globally it's a bit higher at .48%. It is also often not that contagious. That being said, under the right circumstances it could be so it's real important to be aware of the risk factors.