tupilaq
Joined 10 years ago
Joined 10 years ago
We've spent over a year creating a delivery platform based on ArgoCD that bundles a git server and a registry (for air-gapped clients) so that we can deliver our products into various customer environments. This pretty much does it all, but with bells and whistles on top! Nice!
Curious why the pricing page doesn't seem to allow Euros and yet its an option?
I'm running a four node cluster on salvaged SFF machines backing up lvm snapshots to home brewed TruNAS storage and it all makes me happy.
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[1]https://warwick.ac.uk/fac/sci/physics/research/astro/researc... [2]https://www.superwasp.org/about/
Thank you for all you've created.
Just chiming in as my son too has an 18q deletion, albeit further towards the distal arm. Just to bring to your attention, if you were not already aware, of https://www.chromosome18eur.org and its parent organisation https://www.chromosome18.org.
Some great resources and there'll be folks who have experienced similar issues to you and yours.
Please do try and make contact with Dr. Jannine Cody[1] who when faced with a not too dissimilar position to yours pretty much single handedly set about doing what she had to in order to understand and improve her daughters condition and in the process has created a worldwide network of families that meet at conferences and fund research.
Good luck, know that you do not stand alone. It might seem like you do, but you'll be surprised.
[1]: https://www.chromosome18.org/chromosome18-team/jannine-cody/
[1] https://www.noiseprotocol.org/noise.html#introduction [2] https://github.com/slackhq/nebula#3-a-nebula-certificate-aut...
However, that by itself doesn't mean you can't collect it, just that you need to have specifically asked for their informed consent and not hidden this purpose away in a changelog.
I was just responding to the specific language in the parent post that seemed to convey that the author of the article knew about the disability and 'decided' to have the child regardless of this 'fact'.
Of course, there are some wonderful wonderful people in this world who find themselves being adopted by equals.
Additionally, whilst testing has become better, it won't catch everything unless we look for it specifically. There are mosaic mutations that are incredibly difficult to spot and many other chromosome conditions that we are only now able to define because of our more capable tests (http://www.rarechromo.org/disorder-guides).
Finally, no one 'decides' to have a disabled child. I don't know what you actually meant to convey by your comment. Perhaps a judgement on the impossible decisions parents of children with disabilities wrestle with, perhaps a dismissal of all people with disabilities because testing means they shouldn't exist.. I can't quite understand it.
The government should not be able to use the tools of state to suppress legitimate parliamentary opposition. There would be nothing to stop the party in power using the law to specifically target opposing parties.
For the rest of us here in the UK, your traffic is already being collated and probably has been for some time.
Its all bambi legs at the moment.. I wonder if we'll ever get past this stage. Moving it all to a 'real' product is an option before it gets too serious. I'll bring this up with the group and lets see what happens.