mdrew

Joined 4 years ago

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Mar 25

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Comment · 3 years ago

Well said. If you're not well informed, this isn't for you.

Comment · 3 years ago

Depending on your Total PFAS blood level, you are at increased risk for certain medical conditions which require ongoing monitoring by a physician. Knowing this may prevent the development of future diseases or allow you to catch it early in its progression. NIH graphic: https://res.cloudinary.com/mpsh87/image/upload/v1687923551/N...

If your level is significantly elevated (>20 ng/mL), you can audit your environment by testing your tap water and installing a reverse osmosis whole house filter (expensive). If your level is low, you don't need to do any of this. By eliminating point source exposure, your PFAS levels would naturally decline in time.

Lastly, I bring up therapeutic phlebotomy as interesting emerging research because it points in a concrete direction to something that is very actionable (pending more study).

Edit: grammer

Comment · 3 years ago

Just pushing back mildly on the whole "fleecing people" language and implication that NMS labs is somehow "corrupt" with no evidence.

Comment · 3 years ago

I encourage you to read the rest of the discussion.

Comment · 3 years ago

NMS does not offer tests direct to consumers.

Comment · 3 years ago

As I understand it, aside from the local manufacturing, Michigan has one of the best testing programs in the country.

In other states, testing has been laggard. Which is maybe why some states have "low" levels.

Comment · 3 years ago

I get it.

I think it's right there in the post itself. If you have certain occupations, live in certain zip codes, or have medical problems, a test like this can prove invaluable.

If you're just curious, your mileage may very.

I do push back on the idea that not knowing is somehow better. Or people cannot handle learning new information about themselves. It's an old idea from medicine I hope we can move past as it just entrenches the power dynamic between caregivers and patients.

Comment · 3 years ago

The only information we use to generate your lab req in Quest is: name dob biological sex phone number

Comment · 3 years ago

Our first version of the site was PFAS.wtf but that didn't test well

Comment · 3 years ago

Even if 3M/Dow etc paid out a trillion dollars tomorrow, we'd still have the health problems to deal with.

And those are managed by quantifying your risk and taking steps, if necessary.

Comment · 3 years ago

My level is 10.86 ng/mL

Your level was 9.8 ug/mL?

If so thats way way higher. I'm sorry.

Edit: grammer

Comment · 3 years ago

Society is starting to change. EPAs super aggressive new water quality standards. Bans on PFAS in packaging.

PFAS crusader haha.

Edit: forgot the word water

Comment · 3 years ago

A lot of DTC lab testing is actually cheaper than rolling the dice with your insurance company

Comment · 3 years ago

Ok, a few thoughts.

Direct to consumer lab testing is offered in ~47 states in the country. It has been available for years with thousands of tests available. To date, there has been no apocalypse from empowering consumers to know about their own personal health.

NMS is one of the preeminent toxicology labs in the country. This test is Liquid chromatography–mass spectrometry which is known, quantifiable, extremely accurate and repeatable test methodology.

National Academies of Science, Engineering and Medicine explicitly references this lab in their report. Further, they go on to elucidate the risks and benefits of offering PFAS testing to people.

"Harms of PFAS testing include fear induced by blood draw, a small risk of injury or infection at the draw site, difficulties in interpreting results, and psychological stress that may occur when people who are tested learn that they or their family members have high levels of PFAS exposure. On the other hand, biomonitoring for PFAS blood levels may also alleviate fears associated with not knowing one’s PFAS levels. Another potential benefit is increasing awareness of exposure so that exposures can be reduced. If sources of exposure are identified, actions taken to reduce these exposures, such as using a water filter, may also benefit family members in addition to the person who was tested. Community-level benefits may be associated with PFAS testing as well, such as empowering communities to respond to contamination and providing a baseline with which to evaluate the impact of community-level interventions to reduce exposure. Additionally, biomonitoring for PFAS in the context of epidemiologic studies could provide more information about PFAS-associated health effects."

Also a couple of quotes from the same paper.

"Kristen Mello of Westfield Residents Advocating for Themselves (WRAFT) said to the committee:

You don’t have a problem getting an insurance assessor when your car is hit, you don’t have a problem getting an insurance assessor when you have a tornado, but this slow motion unfolding environmental and public health disaster … is intentionally keeping the information from us so that we cannot take action.

Furthermore, Emily Donovan of Clean Cape Fear, said:

Sadly it feels like guinea pigs are treated better, because at least their exposures are thoroughly studied for the betterment of humanity.

And Cathy Wusterbarth of Need Our Water said:

We’ve tested the fish; we’ve tested the deer; we’ve tested the groundwater, the waterways, and the foam. When are we going to test the people?… The only risk [of testing] is to the polluters who do not want us to link them to our exposure."