escapologybb
Joined 13 years ago
Joined 13 years ago
I pretty much completely agree with the content of what you said as well.
I'm currently listening to thief of time which is weirdly good, didn't like it at first but it really is good. That and the last continent.
Obviously this is all secondary to the Night Watch, Sam Vimes is definitely on Hacker News somewhere, right? :-)
So I know that there are are a lot of questions about use my computer, and that's largely because The people on HN are genuinely and wonderfully curious.
The question that seems to fascinate able-bodied engineers goes something like this: "imagine coming home and finding somebody had removed every switch, button and lever from every device in your environment; What would you do?" That's the question I had to answer before I could get to where I don't get a job and have to start my own company as a result!
So my question is how best do people think I should share this information? Blog post, Twitter thread (eww) or messenger pigeon?
They really are world leaders at this stuff, I can use my right index finger and my mouth and with just that I can use Apple products to run my own company and talk to people on HN (you know, the important stuff!). ---
Apple just keeps knocking it out of the park and into a completely new sports metaphor assistive technology provision, they really do. Any measure, I'm a massive nerd/geek/hacker and I really have looked into alternatives both in the open source and proprietary basis and nobody at all is assistive technology as well as at all right now.
It really is as simple as whenever I have a new iShiny, I pounds on the nearest able-bodied monkey and get them to take total box and connected to Wi-Fi and then it's all me. From then on I don't need any more able-bodied assistance whatsoever with setting up the new device, it's awesome. And whilst it's been a few months, the last time I looked known of the other major players were able to come anywhere close to this level of frictionless setup for quadriplegics like me.
ALSO! ALSO! Let's not forget that this isn't some crappy subset of functions that quadriplegics have to settle for whilst everybody else gets the full fat version of the software. Nope, with very few exceptions pretty much anything an able-bodied person can do with their iShiny I'll be able to do as well. Just a little slower.
Apple, and specifically their approach to accessibility is only one of many reasons I'm able to work, see my family and generally engage with society as well as I currently do.
Also, I quite like the term cripple, differently abled or on a good day Stuart. WTF cares what label you give me, I am much more interested in whether this laptop enables me to do the shopping independently and see my Nieces without having to check with an able-bodied person first.
I'm quadriplegic and since lockdown began last March I've not left this bed once. That's not hyperbole, I literally mean that I haven't left the spot in this bed I'm in right now, writing this comment to you all.
So Yeah, connecting with the world like this is something I need to be a part of. I really don't have words to describe how life changing this would be.
My partner says (and I think she is totally right) that I have major trouble when I have more than one emotion at the same time!
I had to give up my degree in CompSci because I was becoming quadriplegic beginning in the early 2000's, And was unable to type. I then spent a decade working out how to become a computer scientist/robotic/terrible drone flyer. If that does not sound difficult, imagine coming home from work and finding out every single light switch, but, lever and key from your keyboard been removed. What do you do? I asked, you are also in pain.
Also, at the time there was no academic structure available to help, so I had to do it myself.
(I find this comment incredibly hard to write because I am a northern man from the UK and emotion is not something we do easily, this feels like boasting to me even though it answers your question. I am writing it Everybody else who might be struggling with some insurmountable problem with a very simple point: Do. Not. Give. Up.
Not ever, and you will either achieve your goal or die trying. You will almost certainly surprise yourself though.)
On a slightly related note, does anybody remember that about a year or so ago somebody posted his "Personal Analytics Dashboard" I think he called it. Basically it detailed every aspect of his life. it was things like heart rate, steps walked, miles run, cycles cycled along with all manner of other nutritional input.
The thing that marked it out for me was that it took all those desperate threads of information and display them in one easy to understand and beautiful layout. But I cannot for the life of me find it!
At the moment I want to get to the state that when one of the nurses comes on duty, she can get the iPad out of the server cupboard (after first pressing her flic button to login) and see on one or two pages things like but not limited to:
* Is the catheter turn on or off
* What is the bosses current heart rate (BPM)
* What is today's resting heart rate and how does it fit in over the week, the month and the year
* Which of the doors and windows are open and are they locked or not
* Did the boss get into his wheelchair today, and if so for how long and how far did he travel
* How many doses of his medication has he had today, and how many does that leave him with for the rest of the day
* Have there been any incidences of Autononmic Dysreflexia[1] or any other life-threatening shenanigans other parts of the team will need to know about
And on and on and on, so it would need to be expandable. It may be possible to skin home assistance with something simple enough but I am not a designer.
I've lots of this data coming in already from lots of different sensors, I am however just struggling with a way of turning those data into information that non-technical users will not be put off by. Because if they are put off by it then they will not use the system, and as this is going to be one of the systems monitoring medication and my health et cetera I would really like them to use. Non-technical users make up the huge majority of people who will be using this system.
And to pre-empt what I know one of you will mention because you care about me, I do not ever put my life in the hands of anyone person, process, widget or anything else! It's nice to know you care. <3
I also hate spreadsheets. I mean, I will continue to use them obviously because there is no choice. Just thought world should know that I hate them.
So yes I am pretty much totally comfortable purchasing sensors and and getting my work PA to install them, I'm also having enormous fun creating new sensors but what I am not enjoying is being quadriplegic and trying to draw out nice designs.
Have a feeling it is not necessary and that there will be a simple way for me to plug in all of my data streams and be given a very shiny dashboard that I could maybe put on the wall of my office on some 17 inch screen something similar.
--------- I've included a couple of links describing autonomic dysreflexia, but be warned it's not a nice condition and it is not fun having one of these episodes. Not happy reading, just put them here for completeness
[1]: https://www.christopherreeve.org/living-with-paralysis/healt...
It is one of the wonderful things about this place, who gives a crap about the emotion being quadriplegic (I certainly don't) let's just solve the logistical problems! And as far as I'm concerned all of the problems that disability has introduced into my life have solutions that revolve around logistics, which project/process/company/widget do I need to buy/invent/collaborate on to make this thing work. It's great.
Apple has a very very awesome accessibility software, it is seriously the best of the world and I have tried all in the decade since I became a full-time wheelchair driver. I use a chin controller to drive my chair, and I also use the chin controller to access Apple's Switch Control[1] using the Tecla Bluetooth bridge. As soon as funds permit I will be updating to the new Tecla as it is an amazing device, it really is the missing link.
This means that anything you can do on an iPhone I can do the same, it is not some subset of commands like most other mobile platforms. Once a new phone or any of the other Apple offerings is taken out of the box, I can get my designated hands to turn on the accessibility software and from then on I can do it all myself. There is literally no the company where this is true. As far as I know.
If I understand you correctly, it might be cool when my iPhone is connected to my wheelchair to be able to drive up to something while I am working and have it charge. It would have to be pretty robust as I will drive into it at some point!
[1]: https://gettecla.com/blogs/news/15538916-what-is-switch-cont... [2]: https://gettecla.com/
The most commonly used automation by a very long way are the lights, because I use voice operated computer people were continually coming into my asking if I was okay because they could hear me talking. This obviously was crazy makin.
So now they ignore all talking unless they see:
All of the lights pulse on and off in a blue colour, which means can you please give me a hand when you have a minute I would like a drink or something similar and it is not urgent.
Or
All of the lights pulse on and off in a red colour, which means drop and come running as I am having and episode of autononmic dysreflexia, my hair is on fire or something equally problematic. It is a very much urgent.
after that I would say that these three are the most used, I'm sure there is a way of pulling that information out of the database but I'm not sure how. If someone from home Assistant Team would like to tell me, that would be great!
* Battery Level on iPhone is below 20%, get someone to plug it in * Notification asking that the basement be closed when it starts raining, or if someone opens the window when rain is predicted to please close it * Logging whenever the medication draw is opened and closed and keeping a running tally (this one is super important)
actually,
> However, the power of HA comes from the third step: automation. The best interface is the one you can forget exists.
I have the interface just for my carers and PAs et cetera, almost all of my interactions with the house are done via voice or other scripts triggered by various things. I would post a picture of my dashboard but it is horrendously messy contain hundreds things!
I founded robotsandcake.org, co-founded Inventability.net and my personal blog lives at EscapologyBB.com.
I'm robotsandcake or escapologybb pretty much all over the Internet. Hit me up at [email protected] if you can think of something we could work on together, just want to say hello or maybe would like to have a conversation about spark plugs. Any of those is fine.
My public key: https://keybase.io/robotsandcake; My proof: https://keybase.io/robotsandcake/sigs/QEWWu6JI2x50Dta04Ofjt9qCh8CTXpgO8WR5HdnHFLs