darthclue
Joined 12 years ago
Joined 12 years ago
Over the last few months, I've finally found a good balance between food and the medicines I must take to simply survive. I am still paying ongoing medical costs which insurance is paying a large chunk of, however, insurance doesn't pay for everything. Just some rough numbers based on costs submitted to insurance shows that a single day in the hospital is roughly $3,000/day and a single gamma knife treatment is roughly $100,000. The gamma knife treatment is the best available option for treating tumors in my brain, however, getting that approved by insurance isn't easy. The last time it happened, the neurosurgeon had to submit a written statement indicating that my life expectancy was at least 6 months beyond the time of treatment or they wouldn't pay.
The money from the fundraiser is being used in one of 3 ways: Medical expenses, Putting food on the table, or final expenses which include funeral costs and paying off the house and car debt so that my family will have a roof over their heads when my time comes. For those that have given, I will never be able to say thank you enough nor will I ever be able to repay you. I do hope that your generosity will be repaid to you ten-fold in some way. I've seen many of you give small amounts and many of you give large amounts, however, the common theme is that you are giving what you can while also wishing you could give me. From me to you, whatever you give is precious. Even it is only $5 it is precious because you have taken the time to give and demonstrated that you believe in providing hope and compassion to others and because those $5 donations add up quickly when it is thousands of people giving.
I lost my grandmother this month from cardiac arrest. Because of my health, I couldn't attend her funeral. That was and continues to be a very painful thing for me. She was always there to make sure I was taken care of and even spent several weeks with us helping to keep me fed and motivated despite her own health failing her. She passed at 80 years, 8 months, and 8 days of age and the legacy she left me was to help others as much as you can. Even though my own health is failing, I am doing whatever I can to bring attention to others whose situations are just as bad, if not worse, as mine.
At this point, even though my prognosis has not changed, I am feeling better. I still have trouble moving around as I run out of energy quickly and fight pain constantly. There is still no cure for the type of cancer I have and the treatments I am on will likely cease to be effective at some point. While there is likely to be a point at which all treatment options have been exhausted, I continue to have hope that a cure may be found before that happens. Quite honestly, even if it meant that I was physically unable to do anything and even if it meant that I had lost a substantial amount of my cognitive function, if I was alive I would be fine. That is truthfully the only thing that I have ever wanted. I simply want to live, to watch my children grow, and to die of old age with my soul mate by my side.
I want to bring your attention to some other individuals whose situations are, I think, worse than mine.
First, there is Nathalie. She is a 15 year old who is battling a rare form of cancer. She is trying to get access to a drug which could very well save her life and might even save mine one day. She meets all of the requirements except for her age. Because she isn't 18, she can't get the drug until it's been approved by the FDA. You can learn more about her situation at http://www.4nathalie.com/
Second, there is Ben. He is a father of 4 who was diagnosed with cancer of the Brain and central nervous system in December and given weeks to live. He's fought an impossible battle and managed to exceed doctors expectations. At this point, he has exhausted all available treatment options and may soon meet his end. I'm not entirely sure what the needs of his family are at this time, however, he does have a fundraiser at http://www.gofundme.com/ben-fights-brain-cancer
If you feel the need to give but are unable to give to more than one of us, I would ask that you give to either Nathalie or Ben. Although my family does need the help, I want to leave this world better than I found it and that starts by helping others. If my time comes, I would rather that my legacy be that of someone who helped others rather than that of someone who begged for help as others in need were left standing alone.
Thank you again for all that you have done for me and my family. I know that I will never be able to repay your kindness.
Jonathan Dale
Don't try to talk to me about God until you've taken the time to actually read and understand who it is you're talking to and what it is you're saying.
I've worked my ass of to get where I am and while you may find our expenses excessive I would point out that they are what meet our needs and keeps us financially secure. Do I like asking for help? Hell no. As a matter of fact, this has been one of the hardest parts of this whole process. As I've been forced to accept that I will die and will likely leave my wife with debts that cannot be repaid I have to consider what will really happen. Without a home, she moves in with her parents. This isn't a bad scenario but it's also not the best scenario. Without the van, she has no way to provide for the basic needs of our children like taking them to the doctor. Note, her parents live in the boonies, there is no public transportation. The cost of a funeral? Have you priced these recently? They aren't cheap no matter how you look at it. And there are far more decisions that go into this than how cheap it is. This has long-lasting emotional impact on my wife, my kids, my mother, my grandmother and a host of other relatives. I can only hope you have people in your life who you care about enough to actually think before you act in the event of your death.
And the moment you begin to think you know anything about how anyone grew up or how hard they've worked to get where they are or how happy they are, you need to stop and rethink your own priorities and happiness. This isn't about things or happiness, this is about security and easing the pain of my death. Memories will make them happier than anything else I can do and we have memories in this house and in that van. And the moment you think I have a sense of entitlement is the moment you need to go down to the nearest shelter and volunteer. You'll soon discover just how entitled you think you are and realize just how wrong you are.
May you find peace and experience true humility before it's too late.
Given my current condition, I can't return to work. I don't know what tomorrow holds. I could wake up and need to be hospitalized yet again or I could be pain free and enjoying every moment I have with my children or I could be dead. It's no longer a choice as to what I do with my life because it is no longer mine. I am living on borrowed time and for every second I can borrow I will be spending it with my children trying to prepare them for my death to make that process easier. No child should have to lose their parent at such a young age and no spouse should find themselves a widow with young children either. Anyone who thinks this is just another sob story should try living it for just the first week and tell me how it feels. Trust me, your tune will quickly change, mine did.
If you feel that your money is better spent donating to a cancer research center, then please do. But your jealousy is seriously mis-placed and you are seriously confused with regards to my motives. I'm not any more worthy of this than the next guy. That's the simple truth. And asking for help of any kind is the last thing I want to do. But I also can't just die and leave my family to suffer and fight for themselves. My human nature tells me that I should do everything I can to take care of them and to take care of those around me. I can't count the number of times I've done something for a complete stranger, like paying for their meal, just because I felt that I had been blessed that day and there was a need to pass it on.
Even as I sit here and look at what happened with this today I am torn between actually using the donations to pay off our housing and transportation debts along with my final resting place or just giving the money to someone else who needs it more than I do. It is not easy being in the position where I know what my family needs and knowing that there are others who deserve so much more.
I'm sorry that no one was there when your girlfriend died. That is truly sad and shouldn't happen to anyone. I can only hope that you find it in your heart to give something to someone and realize that when you need it most someone will be there for you.
And I intend to fight until I have nothing left. I refuse to just give up and die. It's not in my nature.
With regards to making it to Florida, I don't that this would ever happen even if someone stepped up and covered the cost of the entire trip. With my current health, every day is an unknown. When I got up this morning, I had no idea that I'd end up in the ER yet again nor that I'd be so exhausted I'd come home and sleep for several hours. This has become my unfortunate reality. Even if it was an all expenses paid trip it would likely kill me before it was over and it is for this reason that I consider this to be near the bottom of the bucket list. It's more for my kids than it is for me and it's meant to provide them with happy memories that will hopefully sustain them through my death. That said, if we make it to Florida I will at a minimum be in touch just to say thank you.
With regards to funeral costs, have you even looked at what these cost now? It's obvious to me that you haven't or you wouldn't have bothered to mention a county funeral.
With regards to importance, I'm no one. I'm not worthy of the attention this has gotten, but I am human. And that's the point. This is about being human and caring about fellow humans, period. There are people who deserve this far more than I but that doesn't change the fact that someone felt this was worthy of attention and to that person, I say thank you.
Thank you for seeing that this isn't about me, it's not about a pricey funeral, it's not about trips. It's about providing for my family as best as I can given the circumstances. It's about giving them peace of mind when they have lost something important.
May you find your heart before experiencing the loss of a loved one. May you realize that this has nothing to do with frivolous capitalism and everything to do with being human and doing everything you can to provide your family even after you're gone.