Joined 8 years ago
However, she downloaded the raw data and ran it through Promethease[0] and it did supply some useful info about potential drug interactions, which has been useful.
She supplied a fake name to them, used a gift card to pay for it online, and told them not to use her data for ancestry and to destroy her samples after processing. We've since learned here on HackerNews from people who claim to have worked there that they do not follow-through on their promises to do those things. I have no idea whether that's true or not, but it certainly sounds plausible and is infuriating.
[0] https://www.snpedia.com/index.php/Promethease
However, she downloaded the raw data and ran it through Promethease[0] and it did supply some useful info about potential drug interactions, which has been useful.
She supplied a fake name to them, used a gift card to pay for it online, and told them not to use her data for ancestry and to destroy her samples after processing. We've since learned here on HackerNews from people who claim to have worked there that they do not follow-through on their promises to do those things. I have no idea whether that's true or not, but it certainly sounds plausible and is infuriating.
[0] https://www.snpedia.com/index.php/Promethease