My son was diagnosed with B-ALL (RUNX1) in 2020.
I don't want to go deep into it today (Fathers Day here), but he's alive and well now. We rang the bell just over two years ago.
He is enrolled in a study through the Children's Oncology Group mentioned here, and underwent an experimental modification specifically for male patients.
Specifically, the current state of treatment protocols (when he started) was that males received an extra ~6 months of treatment as there was thought that the testes could serve as a repository for the cancer. The data says that is likely not true, and that the tradeoff for the longer chemo is worse than any risk present.
We were fortunate that he hit every single "best case", from him being diagnosed very early, to all of the best possible results from his blood tests at every point.
Many of my comments talking about my experience are buried, but there is plenty that I've said here on HN.
I don't want to go deep into it today (Fathers Day here), but he's alive and well now. We rang the bell just over two years ago.
He is enrolled in a study through the Children's Oncology Group mentioned here, and underwent an experimental modification specifically for male patients.
Specifically, the current state of treatment protocols (when he started) was that males received an extra ~6 months of treatment as there was thought that the testes could serve as a repository for the cancer. The data says that is likely not true, and that the tradeoff for the longer chemo is worse than any risk present.
We were fortunate that he hit every single "best case", from him being diagnosed very early, to all of the best possible results from his blood tests at every point.
Many of my comments talking about my experience are buried, but there is plenty that I've said here on HN.