The practice of how this does damage isn't clear to me. But I'm going to test this in the very skin-in-the-game sense. My genome (sequenced by Nebula Genomics) is available to anyone who would like it. I have raw FASTQ files which you will have to pay a nominal fee to access.
Once upon a time, a friend and I decided we should launch a site where people can submit their genomes and health information so that broad population scale studies can be done. I did submit my stuff to All Of Us and so on, but I think the fact that you need to be special-cased to access the data is probably a loss.
So I think it's time to revisit this whole thing. Perhaps I should make VCFs available instead. They're much smaller and may be more accessible for people. In any case, if you want my FASTQs, just email me.
Once upon a time, a friend and I decided we should launch a site where people can submit their genomes and health information so that broad population scale studies can be done. I did submit my stuff to All Of Us and so on, but I think the fact that you need to be special-cased to access the data is probably a loss.
So I think it's time to revisit this whole thing. Perhaps I should make VCFs available instead. They're much smaller and may be more accessible for people. In any case, if you want my FASTQs, just email me.