No problem, I don't mind talking about it. It was stage 4 when it was detected. Right lung, pleura, up my lymph nodes to the opposite side. There was a lot of it. And I've had Stereotactic RadioSurgery a few times for metastases in my brain.
Herceptin (trastuzumab) is mainly for HER-2 overexpression, whereas I have HER-2 mutation. However, we did try it last year alongside another chemo whose name I cannot remember, and IIRC that's the combo which gave me neuropathy in my feet (I now take lots of gabapentin every day so my feet don't feel like they're on fire).
Other than the clinical trial drug, which helped for a few months, the one thing that did help but eventually gave me pneumonitis so I had to stop it, was Enhertu.
Herceptin (trastuzumab) is mainly for HER-2 overexpression, whereas I have HER-2 mutation. However, we did try it last year alongside another chemo whose name I cannot remember, and IIRC that's the combo which gave me neuropathy in my feet (I now take lots of gabapentin every day so my feet don't feel like they're on fire).
Other than the clinical trial drug, which helped for a few months, the one thing that did help but eventually gave me pneumonitis so I had to stop it, was Enhertu.