Comment by panosfilianos

This community may be of interest to you: https://community.cancerpatientlab.org/

It is comprised of very knowledgeble patients (like you) that are very actively involved in their treatment. I have been researching a lot of these resources due to my mother's condition, so feel free to let me know if you'd like to do some knowledge sharing.

Wish you all the best on your journey. God bless.