The 21st Century Cures Act was signed 8 years ago (but compliance was only required as of 2023). It states that Healthcare Institutions (& EHR developers) must provide a mechanism for patients to access their health records electronically in a standardized format (FHIR).
It's what allowed my open-source startup Fasten Health to even exist. I was diagnosed with a chronic condition, and wanted a way to store my health records privately on my own devices. A bit of luck and a POC later, I was able to confirm that patients can access their own records with little-to-no barriers.
It doesn't matter that I've had 6 different insurance companies over my career, or that I've visited more than 2 dozen different healthcare institutions, as a Patient we have the unique ability to collate and generate our own longitudinal health record.
The 21st Century Cures Act was signed 8 years ago (but compliance was only required as of 2023). It states that Healthcare Institutions (& EHR developers) must provide a mechanism for patients to access their health records electronically in a standardized format (FHIR).
It's what allowed my open-source startup Fasten Health to even exist. I was diagnosed with a chronic condition, and wanted a way to store my health records privately on my own devices. A bit of luck and a POC later, I was able to confirm that patients can access their own records with little-to-no barriers.
It doesn't matter that I've had 6 different insurance companies over my career, or that I've visited more than 2 dozen different healthcare institutions, as a Patient we have the unique ability to collate and generate our own longitudinal health record.
https://github.com/fastenhealth/fasten-onprem