Thanks for your reply.
> I recommend to begin with Wikipedia, but I guess it's a rabbit hole you already entered.
Yes. And my wife falls into the category of 1-.1% of cases, where it's uncertain if it's a cyst, a HC or a HCa, if its malignant or not (+ fully functioning liver, and alcohol consumption of 1 glass of champagne every 5 years).
The standard liver cancer patient has a long history of alcoholism and well established liver-cirrhosis.
This results in fear of losing her within 12 months and dim hope of it all being "manageable" long enough for her to see her grandkids.
> * after a surgery + rays + chemo there are 5 or 10 years*
Apparently chemo works everywhere, but not in the liver.
> Internet is full of crackpots
I know, there's a lot of quackery. And understandably people will willingly choose the esoteric, if it gives them solace by thinking to be in control.
I'm not looking for quackery though. Rather like a single, or a group of Seheult MDs (https://twitter.com/MedCramVideos) just for liver-cancer and liver cysts.
Following the advice of people like a Seheult is not precisely "Following the Science" but rather "Following the frontrunners of science". But I think this is exactly what a lot of people with a rare disease a looking for.
> I recommend to begin with Wikipedia, but I guess it's a rabbit hole you already entered.
Yes. And my wife falls into the category of 1-.1% of cases, where it's uncertain if it's a cyst, a HC or a HCa, if its malignant or not (+ fully functioning liver, and alcohol consumption of 1 glass of champagne every 5 years).
The standard liver cancer patient has a long history of alcoholism and well established liver-cirrhosis.
This results in fear of losing her within 12 months and dim hope of it all being "manageable" long enough for her to see her grandkids.
> * after a surgery + rays + chemo there are 5 or 10 years*
Apparently chemo works everywhere, but not in the liver.
> Internet is full of crackpots
I know, there's a lot of quackery. And understandably people will willingly choose the esoteric, if it gives them solace by thinking to be in control.
I'm not looking for quackery though. Rather like a single, or a group of Seheult MDs (https://twitter.com/MedCramVideos) just for liver-cancer and liver cysts.
Following the advice of people like a Seheult is not precisely "Following the Science" but rather "Following the frontrunners of science". But I think this is exactly what a lot of people with a rare disease a looking for.