Comment by ebertx

I disabled my Facebook account 4 years or so ago and didn't miss it. That said, I now have a daughter with an extremely rare genetic disorder. Although there are a number of databases out there specifically to help parents find other families with rare genetic disorders, we didn't find anyone until we resorted to Facebook. This is only one anecdote, but from my personal experience thus far, Facebook is still unfortunately the best place to find a needle in a haystack.