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Comment by johnpowell

I was diagnosed with Oropharyngeal Cancer 39 days ago. Keeping up with the appointments alone has been bad enough. I am not sure how I would deal with this if I had to shop around for the best deal.

-I went to urgent care for some swelling on my neck that escalated quickly. 45 minutes later I was getting a MRI. This was on a Friday. They called and said it was cancer.

-Monday I was seen by a ear nose throat doctor. Yes, cancer indeed.

-Tuesday I saw a oncologist.

-At this point I decided to move to Portland since my sister lives up here. So the oncologist referred me to another ENT doctor in Portland.

-About a week later I saw a dentist and radiologist on the same day. Everyone agreed that due to the bad shape my teeth are/were in and the location of the cancer my teeth need to come out.

-A few days later another oncologist

-All my teeth removed (this has been rough)

-Tomorrow a "simulation" and PET scan to see if the cancer has spread

-Tuesday is something called a swallowing test

-Wednesday is a check up with the oral surgeon

-Friday is some intake thing for the feeding tube and a meeting with the nutritionist.

-Next Monday feeding tube installed.

-Next Tuesday another check-up with the G.I doctor.

-Next Wednesday radiation and chemo start.

So yeah.. I have no clue how much this shit is costing and I don't really care since I have Medicare. I just wish everyone had the same luxury.

parent johnpowell 8 years ago

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