A very close relative of mine passed away 2 weeks ago. She had cancer for 2 years and when she was first diagnosed the doctors would give her 8-10 “good years”. Well...
When she died, I was shocked to learn that very few data points of her sichkness and treatment history would be preserved for later analysis. Doctors work almost entirely on their gut feeling and probably some clinical studies with n being very small. I hate that she died, but it’s even worse to know that all her data died with her and won’t help any other patient. I think this is one of the rare cases where collecting more data would help protect people
When she died, I was shocked to learn that very few data points of her sichkness and treatment history would be preserved for later analysis. Doctors work almost entirely on their gut feeling and probably some clinical studies with n being very small. I hate that she died, but it’s even worse to know that all her data died with her and won’t help any other patient. I think this is one of the rare cases where collecting more data would help protect people