I can comment on this firsthand. I was born in a hospital here in California, so my DNA was collected. A couple years ago I heard about this program, which I believe to be a gross violation of privacy and overstepping of authority. I read somewhere that you can have your/your child's sample destroyed by filling out a form and sending it to a state health agency (don't remember the specific one now). You have to provide name, date of birth, and the name of the hospital. I did so, and perhaps a month or two later I received a letter saying that my sample had been destroyed. Clearly these samples are not de-identified if they are able to be located with the info provided.
I think this program is utterly disgusting. It's a terrible violation of privacy. The DNA of every baby (born in an actual medical institution) is collected, tested for whatever, and then stored indefinitely. There is no opt-in or opt-out as far as I'm aware, just that you can later have the sample destroyed if you happen to hear about this program and go to the effort of finding out how to do it. This is some disgusting Orwellian BS.
I think this program is utterly disgusting. It's a terrible violation of privacy. The DNA of every baby (born in an actual medical institution) is collected, tested for whatever, and then stored indefinitely. There is no opt-in or opt-out as far as I'm aware, just that you can later have the sample destroyed if you happen to hear about this program and go to the effort of finding out how to do it. This is some disgusting Orwellian BS.